Montana’s new “right to try” law can’t come soon enough for some
At a glance
Kris DeVault is desperate. His son, Brody, was born in March 2023. It wasn’t long before he started to show signs of developmental delay, says DeVault. As time went on, Brody started missing key milestones in speech, movement, and coordination, he says. When Brody was around two and a half years old, a genetic test rev
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- MIT Technology Review — Read original article
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Kris DeVault is desperate. His son, Brody, was born in March 2023.
It wasn’t long before he started to show signs of developmental delay, says DeVault. As time went on, Brody started missing key milestones in speech, movement, and coordination, he says.
When Brody was around two and a half years old, a genetic test revealed creatine transporter deficiency—a rare condition in which the brain and muscles lack the energy they need to develop. There are no cures for Brody’s condition.
But DeVault has learned of a company developing a drug that might help. That drug is still in the early stages of development and has only been tested in animals and a small number of healthy adults.
Doctors can’t prescribe it. DeVault knows the drug might not work.
But he’s doing all he can to access it regardless. And a new law in Montana could make it easier for people in his position to get access to treatments—at least in theory.
Today, Brody is three years old. His dad describes him as a happy, curious, and loving little boy who wants to learn.
But Brody struggles to communicate. “He’s got no words, really,” says DeVault. “He wants to communicate more than he’s able to … which then turns into frustr
This summary comes from MIT Technology Review. Read the full article at the original source.